JANUARY 2021, ISSUE 73 FREE PROGRESS NEW HOPE FAMILY CAMPAIGNS FOR FUNDS A family from Hemel Hempstead say Photo credit: Little Moon Photography they have reached a “turning point” after funding for their daughter’s rare genetic condition was debated live...
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JANUARY 2021, ISSUE 73 FREE PROGRESS NEW HOPE FAMILY CAMPAIGNS FOR FUNDS A family from Hemel Hempstead say Photo credit: Little Moon Photography they have reached a “turning point” after funding for their daughter’s rare genetic condition was debated live in Parliament last month. Lexi Robins, who is 11 months old, has fibrodysplasia ossificans progressiva (FOP), a disorder in which muscle tissue and connective tissue are gradually replaced by bone. The condition only affects around 70 people in the UK, 14 of whom are children. ai15771036927_Neville Funerals Advert 2020.pdf 1 23/12/2019 12:21:32 CONTINUED ON PAGES 4 & 5... ai15771036927_Neville Funerals Advert 2020.pdf 1 23/12/2019 12:21:32 C M Y CM MY CY CMY Tomylocal HEMELnews K NEWS advertise distributed with FREE to homes in Hemel, call 01442 220180Boxmoor, Leverstock Green and Potten | www.mynewsmag.co.uk End EVERY | January MONTH 2022 | 1
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