Harnessing Evidence And Experience To Change Culture A Guiding Framework For Patient And Family Engaged Care

DISCUSSION PAPER Harnessing Evidence and Experience to Change Culture: A Guiding Framework for Patient and Family Engaged Care Susan B. Frampton, PhD, Planetree; Sara Guastello, Planetree; Libby Hoy, PFCCpartners; Mary Naylor, PhD, FAAN, RN, University of... More

DISCUSSION PAPER Harnessing Evidence and Experience to Change Culture: A Guiding Framework for Patient and Family Engaged Care Susan B. Frampton, PhD, Planetree; Sara Guastello, Planetree; Libby Hoy, PFCCpartners; Mary Naylor, PhD, FAAN, RN, University of Pennsylvania School of Nursing; Sue Sheridan, MBA, MIM, DHL, Patient-Centered Outcomes Research Institute; Michelle Johnston-Fleece, MPH, National Academy of Medicine January 31, 2017 ABSTRACT | Patient and family engaged care (PFEC) is care planned, delivered, managed, and continuously improved in active partnership with patients and their families (or care partners as defined by the patient) to ensure integra- tion of their health and health care goals, preferences, and values. It includes explicit and partnered determination of goals and care options, and it requires ongoing assessment of the care match with patient goals. This vision represents a shift in the traditional role patients and families have historically played in their Less